As we acknowledge the 100 year anniversary of the documented discovery of Sickle Cell in the United States Archives of Internal Medicine we would like to offer an educational and inspirational approach to raising the complex social needs and critical discussions necessary for change within the sickle cell community and society at large.
People living with Sickle Cell are amazing, courageous and resilient individuals. A large portion of this population often experience repeated unexpected episodes and seasons of medical and social obstacles that are painted with pain. These complex issues grossly compromise their quality of life and often prevent them from effectively pursuing and achieving their goals and dreams. Silence tends to become the position of choice because so few people actually understand their condition. Can you imagine the struggle to remain inspired, motivated and hopeful for the future?
While Sickle Cell disease is a global health problem there are more than 80,000 people who have the disease in the United States. If each of these people have just one family member or friend imagine how many more are adversely impacted by the disease. In America, the disease appears to be primarily found in African Americans (1:500) and is rapidly increasing in the Latino American population (1:900). It also presents itself in a myriad of countries around the world.
Most people have absolutely no knowledge about Sickle Cell. Our mission is to shine a light bright enough for people to see and understand the implications and complications of this life threatening illness through education and inspiration.
We hope you'll join our discussions and movement for meaningful change.
Together WE can Break Sickle Silence!